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Alopecia Areata
How Can I Take Part in Research?
A good place to start is the National Alopecia Areata Registry sponsored by the NIAMS.
The registry, a network of five centers, will identify and register patients with the disease and collect information and blood samples (containing genes). Data, including genetic information, will be made available to researchers studying the genetic basis and other aspects of the disease and disease risk.
The registry is seeking U.S. residents with alopecia areata, alopecia totalis, or alopecia universalis diagnosed by a dermatologist. Although the registry itself will not be involved in any kind of treatment for alopecia areata, people who register will be made aware of studies for which they may qualify.
To take part in the registry, people don't have to live near or travel to one of the five centers; however, they do have to meet some requirements to participate. For more information, log onto the registry Web site at www.AlopeciaAreataRegistry.org or have your doctor contact:
Madeline Duvic, M.D., Principal Investigator
Department of Dermatology
M.D. Anderson Cancer Center
1515 Holcombe Boulevard, Box 434
Houston, TX 77030
Phone: 713-792-5999
Fax: 713-794-1491
E-mail: alopeciaregistry@mdanderson.org
Is My Hair Loss a Symptom of a Serious Disease?
Can I Pass It on to My Children?
What Can I Expect Next?
How Is It Treated?
How Will Alopecia Areata Affect My Life?
How Can I Cope With the Effects of This Disease?
